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Posts Tagged ‘HB 2236’

Lobby Day: Motherhood and Apple Pie

Posted in Birth Defects, Facts and Figures, March of Dimes, tagged , , , , , , on April 5, 2011 | Leave a Comment »

Joanne Rogovoy, State Director of Program Services and Public Affairs, (left) and our Greater Oregon Chapter Chair Lisa Murphy hand out apple pie at Lobby Day

March of Dimes staff and volunteers handed out apple pie at the Oregon State Capitol today–along with information about maternal and infant health.

In addition to educating those who picked up a slice of fruity American goodness about our mission and our hope to get HB 2236 (the Birth Anomaly Registry Bill) passed, we also took letters, information sheets and purple wristbands to each and every legislator in the Oregon House and Senate.

It was a great day.  And for those of us old enough to remember School House Rock, we had visions of a little white scroll of paper sitting on concrete steps  singing, “I’m just a bill. Yes I’m only a bill. And I’m sitting here on Capitol Hill….”

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Voice your support for the Birth Anomaly Registry Bill

Posted in Birth Defects, Facts and Figures, In the News, March of Dimes, tagged , , , , on February 7, 2011 | 2 Comments »

March of Dimes is advocating for a birth anomaly (aka: birth defect) registry and we sure could use your support.

The Oregon House Health Care Committee will be hearing HB 2236 this Friday; and we’d love your help in calling the committee members to let them know how important this bill is.

Oregon is 1 of only 4 states in the nation that has never had a birth anomaly registry in place. This registry would help Oregon by:

  • monitoring trends and clusters of birth anomalies
  • identifying what birth anomalies are occurring in the state and where they are occurring
  • allowing the state to initiate prevention programs related to preventable birth anomalies and evaluate if the prevention programs are working
  • helping in planning where and what types of services will be needed for families affected by these conditions

You can help by calling or emailing on or before this Thursday one or more of the committee members below and voicing your support for HB 2236, the Birth Anomaly Registry Bill.

Co-chairs: 
Mitch Greenlick:  rep.mitchgreenlick@state.or.us 
NW Portland, Northern Washington County
503-986-1433

Jim Thompson:  rep.jimthompson@state.or.us 
Dallas, Halsey, Jefferson
503-986-1423

Members:
Ben Cannon:  rep.bencannon@state.or.us 
SE Portland and NE Portland, Mt. Tabor, Laurelhurst, Foster-Powell
503-986-1446

Bill Kennemer: rep.billkennemer@state.or.us 
Oregon City
503-986-1439 

Margaret Doherty:  rep.margaretdoherty@state.or.us 
Tigard, King City, SW Portland
503-986-1435 

Val Hoyle: rep.valhoyle@state.or.us 
West Eugene, Junction City
503-986-1414 

Julie Parish:  rep.julieparrish@state.or.us 
Tualatin and West Linn
503-986-1437 

Jim Weidner: rep.jimweidner@state.or.us 
Yamhill
503-986-1424

Have any questions or want more information first?  Contact our Programs and Public Affairs Director for the Greater Oregon Chapter, Joanne Rogovoy at 503.222.9434 or jrogovoy@marchofdimes.com.

Thank you for helping us get to the day when all babies will be born healthy!

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January is Birth Defects Prevention Month

Posted in Birth Defects, Facts and Figures, March of Dimes, tagged , , , , , on January 18, 2011 | Leave a Comment »

Birth Defects Prevention Month

January is Birth Defects Prevention Month. 

Did you know:

  • Congenital heart defects are among the most common birth defects, affecting nearly 1 out of 100 babies in the U.S.
  • Other common birth defects include cleft lip/palate, Down syndrome and spina bifida (open spine), affecting about 1 in 700, 1 in 800 and 1 in 2,500 babies respectively
  • 1 in 5 infant deaths is caused by a birth defect
  • Oregon is 1 of only 4 states that has never tracked birth defects
  • Here are 10 other things you need to know about birth defects

March of Dimes of Greater Oregon has been working for years  to bring Oregon up to par on that next to last bullet point. Why? Tracking birth defects provides clues and information to increase prevention activities and determine what needs more research. It also identifies potential clusters of birth defects and tracks trends over time; allowing states to estimate what types of services will be needed for families affected by birth defects.

We are once again advocating for legislation to implement a registry similar to what’s already active in 46 states.

Birth Anomaly Registry Bill HB 2236 would establish a registry to track birth defects / anomalies.  You can help us get this important legislation passed by contacting your state Representative and Senator and ask that they support this bill.

Find your state Representative and Senator here: www.leg.state.or.us/findlegsltr

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