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2013 Ambassadors_4 photos

Kraig and Heidi Albright had twins. Twice. Both sets were born premature. Their first, Kenny and Katie, at 21 weeks, lived for just one hour. Their second set of twins, Kaden and Kory, were born at 25 weeks and spent 105 days in the NICU. 

James and Holly Hanset’s son, Holdyn, was born at 24 weeks gestation weighing just 1 pound, 8 ounces.  He went through 2 rounds of pneumonia, double laser eye surgery, PDA ligation, dual hernia surgery, grade 2 and grade 4 brain bleed and more during his 134 days in the NICU. 

Jorge and LaNae Rodas’ daughter, Carmendy, spent 14 weeks in the NICU after being born at 28 weeks gestation after LaNae had a complete placental abruption. She was just 2 pounds, 1 ounce. 

Scott and Amy Sandie also had two experiences with preterm birth. Liam and Elsa Sandie were born at 27 weeks gestation and their big sister, Mara, born two years earlier, was also premature. See a video about Liam and Elsa’s early birth here.  

You can learn more about our Official Ambassadors and their stories here.

apple-pie

Greater Oregon March of Dimes will serve apple pie at the State Capitol in celebration of our national organization’s 75th anniversary; as well as to urge legislators to support SB 172.

We’d love to see you there! Please join us.

Oregon State Capitol Galleria in Salem
Tuesday, March 5
10:00 am – noon

SB 172 would ensure that all newborns in Oregon are screened for critical congenital heart disease before they are discharged from the hospital.  An estimated 400 babies in Oregon are born with congenital heart defects. Twenty-five percent of these babies will have critical congenital heart disease (CCHD),meaning they require intervention within hours, days or the first three months after birth.  Screening for CCHD is done by checking the amount of oxygen in the babies blood using a pulse oximeter.  It is a non-invasive test, it is low cost and it is effective in detecting most of the conditions that make up CCHD.

Daddy's Hands-Artistic

The Oregon Senate will vote Tuesday on SB 172, which requires newborns be screened for critical congenital heart disease through the use of pulse oximetry.

An estimated 300 – 350 babies are born in Oregon each year with a congenital heart disease. Of these, roughly 80 are critical, meaning that the heart defect causes severe, life-threatening symptoms and requires intervention (e.g., medical treatment or surgery) within the first few hours, days, or months of life.

You can help!  Contact your Senator and ask him or her to support SB 172 with their vote Tuesday.

High Heels for High Hopes models on My Party Bus

High Heels for High Hopes models on My Party Bus

March for Babies is America’s oldest walking event, but when it comes time to get moving, some women would rather wear stilettos than walking shoes.

Fourteen business women from Springfield will do their walking for babies in Oregon’s first High Heels for High Hopes event, a fashion show benefiting March of Dimes on February 27th. The women will walk the cat walk wearing one of three themed looks: “a night out on the town,”  “just want to have fun,” or “dress for success.” 

Each model has a goal of raising at least $2,000 to help babies be born healthy.

To raise some money before the big event, some of the models took the My Party Bus to attend a Eugene Women Business Leaders networking event, then went to The Bridge, followed by Hop Valley. They collected over $1,000 in cash donations and were the talk of Eugene Springfield.

So far the ladies have raised over $12,500 and have just one week to reach their goal before the event. Donations can be made on the models’ behalf to March of Dimes here: http://bit.ly/WTXjfr.  Auction items will also be at the event, each relative to one of the model’s three looks. 

High Heels for High Hopes is Wednesday, February 27th at the Kendall Toyota Showroom (373 Goodpasture Island Rd in Eugene).  Beverages and appetizers will be served starting at 6:00 pm prior to the runway show beginning at 7:00 pm. General admission tickets (just 20 left!) can be purchased for this event through Aimee Corey at March of Dimes; VIP tickets sold out the first week of sales.  

Funds raised by this event will benefit the Lane County March for Babies, which helps support prenatal wellness programs, research grants, neonatal intensive care unit (NICU) family support programs and advocacy efforts for stronger, healthier babies. 

For information about ticket sales or how to donate, contact Aimee Corey at acorey@marchofdimes.com or (541) 225-5023.

 

The Senate Health Care and Human Services Committee, chaired by Senator Laurie Monnes Anderson, held a public hearing and work session on SB 172 yesterday.  The bill,  which requires newborns be screened for critical congenital heart disease through the use of pulse oximetry, is now out of Committee.

The Committee voted the bill out of committee with a do pass recommendation and it now heads to the Senate floor , carried by Senator Alan Bates for a vote.

That’s good news for babies!

Happy Valentine’s Day!

love_heart_MOD_web 500

Sending you a little *love* on Valentine’s Day!

Newborn Screenig via Pulse Oximetry

Newborn Screenig via Pulse Oximetry

We’re ending Congenital Heart Disease Awareness Week with a hearing in the Senate for a bill to add screening for critical congenital heart disease (CCHD) to the panel for all Oregon babies.

March of Dimes and the American Heart Association, along with affected families, are advocating for Senate bill 172  (also bill HB 2693) to add screening for CCHD to the newborn screening panel via pulse oximetry.

An estimated 300 – 350 babies are born in Oregon each year with a congenital heart disease. Of these, roughly 80 are critical, meaning that the heart defect causes severe, life-threatening symptoms and requires intervention (e.g., medical treatment or surgery) within the first few hours, days, or months of life.

You can help! 

  • Join us at the hearing on Valentine’s Day, February 14th, at 3:00 pm at the State Capitol Building in Hearing Room A where the Senate Healthcare and Human Services Committee is meeting.
  • If you can’t make it on Thursday, you can email your support of SB 172 to Senator Laurie Monnes Anderson at sen.monnesanderson@state.or.us

To learn more, call our Director of Programs and Public Affairs, Joanne Rogovoy, at 971-270-2885 or email her at jrogovoy@marchofdimes.com.

 

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