Congenital heart disease (CHD) is a problem with the heart’s structure and/or function which is present at birth.
February 7-14 is Congenital Heart Disease Awareness Week, and we’re doing something about it.
March of Dimes and the American Heart Association, along with affected families, are advocating for a bill (HB 2693) to add screening for critical congenital heart disease (CCHD) to the newborn screening panel via pulse oximetry. CCHD means that the heart defect causes severe, life-threatening symptoms and requires intervention (e.g., medical treatment or surgery) within the first few hours, days, or months of life.
Some hospitals in Oregon are already screening for this, but some aren’t. We think it shouldn’t matter what zip code you’re born in, every baby deserves a healthy heart.
You can come to the public informational hearing this Friday, February 8th, from 1:00 to 2:30 pm at the State Capitol Building where the House Healthcare Committee is meeting.
There will also be a hearing in the Senate on Valentine’s Day.
To learn more or see if you can help, call our Director of Programs and Public Affairs, Joanne Rogovoy, at 971-270-2885 or email her at email@example.com.